(WDAF/CNN) - A Missouri teen is fighting a life-changing medical condition... But she does not know what that condition is.
Neither do her doctors. It’s a mystery that has stumped medical professionals and left the teen blind.
Jordyn Walker enjoyed a family cruise last summer. But when she came back to the states her medical nightmare began.
It started with stomach pain and bloody stools.
"It just went haywire from there. Everything started swelling," said Jordyn Walker.
Doctors in North Carolina ran tests--and sent her home, thinking it was just a sinus infection.
Ultimately--15-year-old Jordyn lost her sense of taste and smell.
That led to multiple specialist visits back home in Kansas City and tons of tests.
"Everything came back normal," said Kendyll Walker, Jordyn’s mother.
The family was told it was a "one in a million" episode that probably would never happen again.
But two weeks before Christmas this year --Jordyn’s medical mystery came back with a vengeance.
"My whole face just turned purple and bruised and giant with blood," Jordyn said.
"It was terrifying to watch it happen all over again and knowing that we couldn`t do anything about it," Kendyll said.
This time--Jordyn went to the e-r at the university of Kansas hospital.
She ended up in pediatric intensive care…
A 16-day hospitalization...with more tests, medications and two surgeries to reduce eye swelling followed... and doctors were still stumped.
"There's no answers. There's nothing they could do," Kendyll said.
While the cause for her strange symptoms remains unsolved, then teen does have one diagnosis… permanent blindness.
"She won’t get a chance to drive. Or see her sisters get married like she wants so much," Kendyll said.
The skilled archer and budding journalist knows things won't ever be quite the same. But Jordyn’s outlook is determined and positive.
"I'm not gonna let this stop me," Jordyn said.
The family's incredibly grateful for an outpouring of support...
"It makes you feel like you`re not alone," Jordyn said.
Now they're hoping someone will help find answers to finally help Jordyn heal.
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